MTHFR and Factor V Leiden support

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Categories » Trying to Conceive » MTHFR and Factor V Leiden support

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MTHFR and Factor V Leiden support

mommyod

Rank: out of the nursery
Posts: 102
Joined: 5/7/08

Full Term

MTHFR and Factor V Leiden support | 5/14/08 8:20 PM

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I have had several miscarriages and with my last successful pregnancy (4 years ago) was diagnosed with MTHFR and Factor V Leiden, both blood diseases from what I understand. I have had several more miscarriages since then. I also have to take progesterone for the first 12 weeks. I am pregnant now and am about 7 weeks. I feel like I'm faced with a triple whammy and at no point can I "relax" because I'm "through the dangerous period (the first trimester)". With my son, my obgyn told me I could never assume that my pregnancy would be successful no matter how far along I was.

I'm just so down, depressed, and discouraged. I want to be happy about being pregnant again finally, but it's so hard not to worry about it. Does anyone else have all these problems? I just feel like there is no light at the end of the tunnel and no one understands.

blessed.mommy

Rank: bean
Posts: 3
Joined: 5/9/08

RE: MTHFR and Factor V Leiden support | 5/16/08 12:20 AM as a reply to mommyod.

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Hey there. I am in the same boat as you are. I lost my first son when I was 8 and 1/2 months pregnant with him. I then found out that I had MTHFR and when I was pregnant with my 2nd, I was scared the entire pregnancy. It seemed like I was never going to hear the sound of his cry when I was giving birth to him.

We are actually in the process of trying to concieve again and the fears are already setting in again. I don't think there is anyway to get rid of them, but all we can do is put our faith in God that he will take care of us.

If you ever want to talk about it with someone's whose been there, feel free to message me. I think it has helped me to have someone who knows what I have been through to talk to, so maybe the same will go for you.

Kristin

mommyod

Rank: out of the nursery
Posts: 102
Joined: 5/7/08

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RE: MTHFR and Factor V Leiden support | 5/16/08 3:34 PM as a reply to blessed.mommy.

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I can't even begin to imagine how difficult that must have been for you. I tend to miscarry very early. It's just so discouraging sometimes. I'm nearing my eigth week now and just can't get into it. I know that may sound terrible, but the truth is, until I did hear my son cry I just never believed it was actually going to happen. And I feel that way now. Between the shots, the progesterone therapy and all the meds because of the Factor V Leiden, it's just so very difficult.

Thanks for your words, it does help a little. I don't know a single person with the same or even similar problems.

blessed.mommy

Rank: bean
Posts: 3
Joined: 5/9/08

RE: MTHFR and Factor V Leiden support | 5/18/08 10:20 AM as a reply to mommyod.

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yeah, i know how that is. it wasn't until i heard his cry as well that i knew everything was okay. and i'm sure that you know what i mean when i say that when they cry in the middle of the night, it's one of the most comforting sounds in the world, where as to most people it's an annoyance.

just try as hard as possible to keep positive. remember the more stress you have, the more you're putting on that baby. and never feel guilty for calling the doctor too many times, i did at first, but then realized THAT'S WHAT I'M PAYING THEM FOR!

it wont get easier, you already know that. but you have the opprtunity to make your faith stronger.

mommyod

Rank: out of the nursery
Posts: 102
Joined: 5/7/08

Full Term

RE: MTHFR and Factor V Leiden support | 5/19/08 1:01 PM as a reply to blessed.mommy.

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That is true. I tell people my son is my "miracle child." I never expected to do this again. But my hubby and I are very hopeful....thanks again. It means a lot to know that someone else out there has the same complications.

Melissa Peters

RE: MTHFR and Factor V Leiden support | 8/16/09 3:45 PM as a reply to mommyod.

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hi...
i just got dx w factor v homo, factor II hetero and MTHFR hetero...I had my daughter 3 years ago w no complications before dx. when she was 2 (one year ago this Sept) we started trying for our second got preggo right away and found out at 8.5 weeks no hb missed miscarriage. dr didn't think much of this and sent me on my way. I got preggo the next month only to have a chemical at 4.5 weeks. dr said it was bc i got preggo too soon after dnc. i believed her and took off 3 months and got preggo again 3 months later-again chemical 4.5 weeks. now i wanted some answers...i insisted i get a blood work up and all the fun stuff came up...i was very upset for i am adopted and know NOBODY but my daughter who is my blood. i wanted a big family and this was my worst nightmare coming true. the mfm dr i went to go see gave me NO hope of having another child. she said it is risky and bla bla...went to see hemo who told me i will be fine mostlikely w lovenox shots 2x's a day at poss preggo test. listened and had another chemical this month. by the time i called her got an appointment i had started bleeding.
now i am going to see reproductive endocronologist this week. I am nervous and excited. I need help! I have a feeling I need lovenox prior to getting preggo. maybe while ttc. nervous too bc i could have gotten myself preggo this month wouldn't know for a week and 1/2..maybe he could put me on something now and i would be okay.
any thoughts...? i am taking baby asprin, extra folic acid, extra b vitamins, and prenatal...what are you taking???? did you have your little baby yet?

Melissa Peters

RE: MTHFR and Factor V Leiden support | 8/16/09 3:49 PM as a reply to Anonymous.

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If anyone has any suggestion or can help
please email me MPeters@Haledon.org

THANKS!

Melissa Peters

RE: MTHFR and Factor V Leiden support | 8/16/09 3:52 PM as a reply to Anonymous.

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If anyone has any suggestion or can help
please email me MPeters@Haledon.org

THANKS!

Amanda

RE: MTHFR and Factor V Leiden support | 10/5/09 9:19 AM as a reply to mommyod.

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hi there i was surfing the net and read your story I am also in the same boat, I have one gene of MTHFR and one gene of the FVL I too have been pregnant three times with no success. first pregnancy we lost our son at 18 weeks after I found out that I had these bld disorders and second preg with treatment lost at 10 weeks third lost our son with treatment at 16 weeks I'm begining to have no hope and also took progestrone. You can write me if you wish at presh116@yahoo

Jennominal

Rank: out of the nursery
Posts: 102
Joined: 8/11/08

32nd Week

RE: MTHFR and Factor V Leiden support | 10/5/09 1:04 PM as a reply to Anonymous.

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