I have had several miscarriages and with my last successful pregnancy (4 years ago) was diagnosed with MTHFR and Factor V Leiden, both blood diseases from what I understand. I have had several more miscarriages since then. I also have to take progesterone for the first 12 weeks. I am pregnant now and am about 7 weeks. I feel like I'm faced with a triple whammy and at no point can I "relax" because I'm "through the dangerous period (the first trimester)". With my son, my obgyn told me I could never assume that my pregnancy would be successful no matter how far along I was.

I'm just so down, depressed, and discouraged. I want to be happy about being pregnant again finally, but it's so hard not to worry about it. Does anyone else have all these problems? I just feel like there is no light at the end of the tunnel and no one understands.

I can't even begin to imagine how difficult that must have been for you. I tend to miscarry very early. It's just so discouraging sometimes. I'm nearing my eigth week now and just can't get into it. I know that may sound terrible, but the truth is, until I did hear my son cry I just never believed it was actually going to happen. And I feel that way now. Between the shots, the progesterone therapy and all the meds because of the Factor V Leiden, it's just so very difficult.

Thanks for your words, it does help a little. I don't know a single person with the same or even similar problems.

That is true. I tell people my son is my "miracle child." I never expected to do this again. But my hubby and I are very hopeful....thanks again. It means a lot to know that someone else out there has the same complications.

If anyone has any suggestion or can help
please email me MPeters@Haledon.org


THANKS!

hi there i was surfing the net and read your story I am also in the same boat, I have one gene of MTHFR and one gene of the FVL I too have been pregnant three times with no success. first pregnancy we lost our son at 18 weeks after I found out that I had these bld disorders and second preg with treatment lost at 10 weeks third lost our son with treatment at 16 weeks I'm begining to have no hope and also took progestrone. You can write me if you wish at presh116@yahoo

Hi,

I know your post was a long time ago but wanted to find out how things went with your pregnancy if you don't mind. I have a luteal phase defect (very low prog) + factor 5 leiden. Just had bloodwork today to test for mthfr so I don't know yet if that's an issue. I also feel the odds are stacked against me and can't have any excitement around pregnancy. Had 2 m/c's + 1 chemical. Ugh! Hope you're well. I "felt your pain" when I read your post.

Hi Amanda,

Sorry to hear of your losses. It sounds horrible. I had 2 early m/c's and 1 chem. Am taking prog + estrogen every month in case i get preg. Did you do the lovenox injections or a blood thinner like that? I will probably have to do the injections. Hope all is well. Thank you.

I've had eight miscarriages #6 and #7 were eleven years apart and it was after #7 that testing finally showed that I am positive FVL and MTHFR. Earlier testing had shown a slight progesterone deficiency now my estradiol and FSH levels are questionable. After #7 I was put on folbee, prenatal, and baby aspirin. I got pregnant only after taking an herbal weight loss supplement that contained an estrogenic herb. I am now waiting for the end of May when my reg ob/gyn and I will reconvene to plan another pregnancy and this time add in heparin. The longest I carried was to nine weeks - well the baby survived to that point and my body continued to carry for almost a month later. that was #6. #7 the doc had to give me a methotrexate injection, # 8 I carried for two weeks after initial drop in hCG levels before my body finally released - and that was with me uping my aspirin dosage to two a day, went junk food and caffeine, as well as slept with a heating pad on high .. all in hopes to help my body dispell of the pregnancy with as few complications as possible and it worked - rather than pieces the full 'tissue' came out at one time followed shortly after by a huge blood clot. (sorry for TMI)

On one hand I feel like saying I'm getting too close to menopause and should just give up but the other hand I just feel I can not give up, that perhaps something with my case will enlighten my doctors to more knowledge which will be passed on to other doctors and help others to not endure what I have endured. --- After #6 I had taken on a give up attitude, #7 surprised me greatly and renewed the drive to strive to be a biological mother.

Just wanted to let others know y'all are not alone. Hang in there don't give up - the emotional aspect is tough but you can get through it. Thanks y'all for posting here and letting me know I'm not alone.